Tuesday, February 16, 2010

Jason is doing great as always. He is getting blood today. Was looking pretty pale. His counts are playing around a little but growing so i hope we get to go home within the next week or so. We have been here since Jan 22nd and i am ready. So far the plan is to get us out then back around March 8th then transplant around March 15th. That is if everything goes ok with the donor..which we still dont have one nailed down. They have 2 that are good and another one came in yesterday so they are ordering the results to be expedited..then once they have those results will pick the best out of the 3..such a long process but so worth it for my beautiful son.

As for my other son..wow he is growing up so fast and i never see him it seems like. I feel like i am missing out on such an important part of his growing up. So thankful for Shawn for all he does

Wednesday, February 10, 2010

Jason is still doing great. No ANC yet but patiently waiting.
He got plateletes yesterday and getting blood today
I am going to get Austin today to bring him up so they boys can hang for a while. They havent spent time together for almost a week. And i miss seeing them interact.

Update on donor...
We had 4 come in
2 are too much of a mismatch so they arent canidates any longer.
1 is still in the running although they are a KIR match and we are looking for a mismatch if possible
The other is in the running we are just still waiting on KIR results
And one more person coming in on Feb15
So WOW we had 5 potientials. Feel pretty good about that

Will keep everyone posted.

Thanks to Shawn for all the love and support you give..I hate that my family isnt together and i am so glad i have you to lean on. I love you babe

My dad is going to stay here Sat night so we are going to hang out with Austin and take him putt putt golfing and goofing around. I cant wait!!!

Monday, February 8, 2010

OK the infection came back as Ecoli but he is doing good. Only fevers that one day so he is doing great. Smiling and laughing and doing homework. He is reading over my shoulder as i write this so i better be nice...Jason says hi to everyone.
Thanks Daphne for the cinnamon rolls..

Friday, February 5, 2010

Yesterday about 4am Jason started getting a fever. Then by 8am he was shaking, vomitting, sweating, in pain and feeling like crap. So of course they do the normal steps of starting you on 3 antibiotics and drawing blood to see if you have an infection. He seemed to get a little better through out the day and we just layed around and dozed in and out. Then again around 6pm he was back to having a 101.8 fever. The nurse came in and said he has a bacterial infection in his red line of his broviac which is why he is getting sick. He has nothing in his system to fight off the infection. So lets pray the medicine does the job.
This am the nurse came in and said that she is surprise he is doing as well as he is with this type of infection. The kids ususally get more sick. But you know Jason...hard as steel. His hair still hasnt fell out from this round. He is such a great kid

Wednesday, February 3, 2010

Yesterday was a fun day. Jason has alot of homework he needs to get done this week and of course they needed to give him 3 units of blood yesterday so he slept all day. The day before he slept all day cause his blood was low in his system. Poor guy cant win for anything. He had a reaction to the platelets and was getting leg cramps and hives all over his body and started coughing. He also hasnt been able to poop for about 4 days so they are loading him up on meds to make him go.
Finally last night around 12:30 am he was done getting his blood with no reactions and as we are trying to sleep there are code red alarms being announced over the loud speaker. The roommate is trying to go to the bathroom and is hitting everything in his path with his pole. I guess after so long the noise just becomes back ground noise.
I know these kids hate being here and i feel so sorry for them.
I just wish this would hurry up and get done!!!