Sunday, August 31, 2008

Bloody nose




I am spending the night with Jason tonight. We've had a two hour long battle with a bloody nose. It kept dripping and dripping with no avail. We tried toilet paper, a nose pincher, ice bags, rags and even went the holistic route with some tea bags to constrict the blood vessels. The nurses evern stood there for a good 20 minutes or so pinching his nose. They have it packed with some powdery stuff to soak it up and help form a clot. He is very uncomfortable but he's a real trooper. He's going to have to sleep with it over night and give it a chance to clot. He will probably have to have some platelets tomorrow.

Night all!

Laura

Thursday, August 28, 2008

Good days

He has handled chemo really well this round. He got sick once and that is it. But now is when his counts start dropping and we need to watch for fevers and infections again. When we checked in last week his counts were over 6000 and we are around 1700 now. So on the roll down hill....
He is getting a blood transfusion right now so he is sleeping. We havent been getting good sleep cause our roommate is a sick little baby boy who is having a hard time and cries alot. I feel so bad for them. They are the nicest family.


We also started last weekand his teacher comes on Thursdays but i have to help during the week. Man i am not a teacher. But we will make this year a good one.

Good days

He has handled chemo really well this round. He got sick once and that is it. But now is when his counts start dropping

Tuesday, August 26, 2008

Lunch Break


I am so glad I got to see Jason on my lunch break today. It was a much needed break from my rough day at work. Jason is putting on a lot more weight which made me very happy to see. Please try and visit him as much as you can. I wish I could more...

Jason not only has to deal with his own pain, but he also has to deal with the pain of the other children he shares the room with. This poor little baby boy who is only 22 months old had a brain tumor and now they found three more. He was throwing up blood all day and had black diarrhea in his diaper. His breathing was so loud and his lungs were so full of fluid. It was so hard to be in there listening to him. Poor Kim and Jason have to see it on a daily basis.

Please pray for Jason and that little boy. Pray for all of those poor little kids who have to suffer. They are all angels.

If you have a few extra dollars, please send a donation to the Phoenix Children's Hospital. Those children really need it.

http://www.phoenixchildrens.com/ways-of-giving/

Laura

Thursday, August 21, 2008

Back for round 3

Yesterday Aug 20th we checked in for round 3 of chemo. Had another spinal tap and started with treatment at 11am. He is so strong he isnt even feeling the morphine for numbing the pain. So he was crying of couse, then forgot about the pain latter. Decided he was hungry and ate a cheeseburger, fries, and 5 rice krispies treats. Then it all came back up.

Then the hospital had no rooms available and we sat in the clinic until 4pm. They kicked us out and we had to come over and sit in a treatment room until 7pm. Finally we got our room, and it is the big one with the stationary bike. So i am happy cause now i can work out again while sitting in here.

And the best news of all is Jason is down to .04% leukemia cells in his body. That is amazing considering we started at 95%.
I couldnt be happier and have nothing but great things to say about his doctors.

Austin is doing good in school this year and has started football. Shawn is coaching again they are having good bonding time together since i will be here with Jason. I cant believe how big Austin is getting. WOW! It is weird to watch him turn into a man.

Well bye for now. And feel free to come and visit or call us anytime.

Friday, August 15, 2008

OUCH

Today was a hard day. We had to go in for the bone marrow test. And all the morphine and other meds they gave him didnt make one bit of difference. He was awake and screaming and crying the whole time. Man this is so hard to see your baby laying there reaching out and crying for you and there is nothing you can do.
But the good news is that he is down to 1%Leukemia so we are going forward with round 3 as planned starting Wed.

His school teacher also came by last night and loaded us up with homework so we will be doing that as well to keep him on track for 4th grade..

Thanks again to everyone for all you do

Wednesday, August 13, 2008

Great Day

Yesterday was a great day having Jason home. We watched movies, played games. My mom and newphews came over and he had some friends over last night while his dad Shawn and brother Austin were at football practice. It felt like a normal life again. Which is where we are headed.

Gonna try for another good day today. Maybe get out to spend some of his gift cards everyone has gotten him.

Tuesday, August 12, 2008

HOME

I wanted to thank everyone for coming out to the First Annual Golf Tournament for Jason. It was a huge success. We raised about 1/3 of what his medical bills will be. We had a great time. Channel 3 News broadcasted the weather live from there and we were able to get Jason to call into the show and be on TV.


Yesterday we came home. We go back in on Friday for bone marrow testing at the clinic then we dont have to check back in for round 3 until Aug 20th.
It was so nice to see him this morning when i woke up.

Dont ever take your children for granted. They are the most precious things in life.

Friday, August 8, 2008

What a difference a day makes

Jason is doing alot better from Tuesday. I stayed with him last night so his dad could go and see the Cardinals pre season game. He was tired most of the day cause he was getting blood. Then all his counsins came out to visit and he woke up. He finally ate a little bit and watched some TV.

Today his counts are at 60 and 45% monocytes. That means his is on his way back to recovery.
Nothing has grown so no infections for fungus.

We should be home by early next week. Then on the 13th he has a bone barrow test.
They have him scheduled to come back on the 20th for round 3.

He unfortunatly wont be home for the golf tournament tomorrow but we will have his pictures posted at every hole and on TV.

WE LOVE YOU JASON!!!!

Thursday, August 7, 2008

Getting better

I went and saw Jason last night and he didnt look good. He was in pain and upset to his stomach. I was so sad all i wanted to do was cry. But i talked to him this morning and he sounds alot better. I wil be staying with him again tonight.

We dont have the results of the blood cultures yet but the doctors are pretty sure he has an infection of some sort. Please pray it is nothing and it will pass.

Thanks again to everyone for the help with the golf tournament this weekend. We are totally full and even added more that were open. That is over 145 people.

Our friends and family have really come through for Jason. I appreciate it all.
If you notice there is another posting from Nadine Greathouse. She is running in the PF Changs race to help find a cure. The proceeds will go to help all children not just Jason. I know we have been getting donations for Jason but please keep in mind there are alot of sick kids out there that still need the love and hope of finding a cure someday.

Wednesday, August 6, 2008

Fevers, sickness

Well Brian stayed with Jason last night and he came down with another fever and is throwing up this morning. The fever is only 101.5 so not that bad right now. Everyone pray that it goes down and doesnt get worse.

I was with him yesterday and he was doing great. I finally beat him at monopoly. YEAH!!!!

But today is another day and we will make it.

Monday, August 4, 2008

UGH!!!!

Well Jason is doing good. He is staying happy and we play monopoly all the time. For some reason i can never win.

We are excited about the golf tournament this weekend. We have all the slots full.
Thanks everyone for all your support.

But on a another note. We got broken into on Thursday at home and they cleaned us out. They took TV's, XB0X, PS3, PS2, all the games, and even my brand new vaccum. And many more items. I am gonna crack if anything else happens to us.

Austin started school today. He is in 6th grade. I was sad that Jason wasnt able to go and started to cry.