Shawn, Austin, and I went and saw Jason today. I havent been up in two days and it seems like forever. I dont know how parents can stay away from their babies. I have a hard time telling myself its ok to let him spend time with his dad and for me to get things done around the house. Guess all moms are like that though.

Well a couple of things have changed with Jason just in the last two days. His jaw is really swollen and he is talking funny. They did a CT Scan but all came back ok. He is on antibiotics just in case but they didnt see anything. His front bottom tooth is exposed all the way to the root. His gums have disappeared and his gums are all red. Again he is doing the meds that are needed so we are checking to see if maybe different toothpaste will help with the sensitivity and also checking to see if the gums will grow back. I hope so...

And last but not least, chuncks of hair are coming out. It really seemed to take a while this time but he doesnt seem to mind. He has bald spots on the sides and he looks so cute.

Will keep everyone updated on any new changes that happen.

Have a safe New Year everyone!

Jason is doing great. We had a wonderful Christmas thanks to PCH and Tod and my family all helping to get us gifts for the kids. My sister Shannon surprised everyone by coming to town so that was just the icing in the cookies. Brian is also in town with Jason i am home getting much needed rest and time with Shawn and Austin. I am so tired though i am sleeping 12 hours at a time. I think my body is making up for lost sleep and preparing for more lost sleep in the months ahead.

Jason is getting platelets today again, he seems to be getting more transfusions this time around with platelets and blood but maybe that is expected due to the type of chemo.

His hair is still holding strong so no updates there.

I will let everyone know when i have more details on the bone marrow drive a well!!!

All is good here, Jason is doing great. We are just waiting for his counts to go down and then come back up again..so it is boring as you very well know. We are making the best of it though.
With the storms today the power went out in the hospital for a while. Everyone was running around with flash lights...but we are back in business

Today is a good day. All is going well. We had a great time last night with alot of friends and family coming up. It was just like at home, laughing and joking and playing games. The kids always play board games with our friends so thanks Lynds for the idea of MAD GAB.

Jason is getting Plateles right now and is really tired. Might even be having an allergic reaction to this batch. He is coughing and has cramps in his legs. He did get Benadryl so that seems to help some but we are still monitoring him just in case.

Austin might go the school dance tonight with his friends. I really hope he does. He would have fun and it would get his mind off of things. I was able to spend time with him yesterday and man, once you get him talking his keeps going and going. It is so nice to see how your kids grow up and turn into young men.

Will keep everyone posted on any other updates....

Jason is doing good as always. Last night was his last night of chemo and he has handled it all very well. He only had a fever one night and has only vomitted a few times.
Still his spirits are good and we are loving our time together. We have been lucky enough to have our own room this entire stay. Knock on wood. It has been slow so we havent had to share. That has made this stay not so bad. Shawn and Austin have come up to vist and we can be ourselves and watch football, play games and be loud and not worry about who is on the other side of the curtain.

Austin surprised Jason yesterday with the new Grand Theft Auto game for his XBOX. And all who know Austin, he doesnt share his $$ and he went and bought the game for his brother because he felt so bad he has to deal with all of this again. Both of my sons have such a great heart. I am blessed.

Our meeting with the BMT team has changed to Friday am at 10. So Uncle Robert will be taking Austin to the airport so that Shawn and I can attend the meeting. Everyone pray for us to have an open mind and ask all the right questions of the doctors and have an understanding of what will be happening

Jason is still doing great. Today is his last batch of chemo for this round. His spirits are high and he is keeping up with homework and as always making me laugh.

We meet on Thursday with the BMT team so we will have more of an idea of what the plan is. I will keep everyone posted

Well the tests came back from Jasons bone marrow aspiration and he has 33% leukemia cells. They started chemo yesterday and he tolerated the first batch well. Then last night he started throwing up and had a fever. Then to top it off our bathroom sink over flowed and the room flooded. So we have since moved to another room. His fever is gone and he ate breakfast fine. Back to homework and Monopoly. :)

OK well alot has changed since last time. Jason had a doctor appt on Dec 2 and there were 4% blasts in his blood. That means the Leukemia is back. So over the weekend we jammed in an early X-mas with family, we hung out for Austins 14th bday by taking the kids to the Cardinals vs Vikings game, and relaxed at home.
We got admitted Dec 8th and even since his last appt his ANC has dropped over 400 points down to 442. But what is odd is they havent seen any more blasts in his blood since. I have to talk to the doctor about that....i dont quite understand. But a miracle would be nice and they can say it was a mistake
So yesterday we came in about noon. Did echo, ekg, x-rays, ton of blood work, swabbed his nose to make sure not sick and just getting moved around and settled. We didnt sit down until 7:30. His school teacher came and dropped off homework... man then on top of all that i forgot how much sleep you DONT get up here. But we will be fine. Jason has high spirits.
We are working on a bone marrow drive for him, i will keep everyone posted