Wednesday, October 29, 2008

Sorry i havent updated everyone for a while. Jason is doing great. He might come home tomorrow. That will wrap up round 4. He is doing great. This one was a hard one but he still did better than most.
One more left and he nailed this baby. I am so proud of how strong he is. He is the most amazing child i have ever met.
My Uncle John is in town so he is going to be with us this weekend. Jason has never met him so it will be nice for them to spend time together.

An update on our favorite little boy Brady. He is doing great. He went to his fundraiser on Sunday. He has an amazing family. We pray for him all the time.

Austin is still doing good. They have a bowl game this weekend for football. They ended the season 5 and 3. Not so bad.

Tuesday, October 14, 2008

Jason is doing better. He still doesnt feel good but at least he is up and talking and his dad said they watched a movie and played video games.
The fundraiser went really well on Sunday. The weather was perfect and we had a great turn out. Everyone had fun.
Thanks to everyone for their support.

Friday, October 10, 2008

What a difference a day makes

100% turn around
His fevers have broke. He is still out of it most of the day since they put him on a continous morphine drip. He can also push the button for more if he is in pain. He does pretty good about no pushing it unless he has to get up for the bathroom. Which is constanly. We have a toilet by the bed since he has to go so much.

Last night was another long night. His heart rate was being monitored and kept coming back at 250. Which for him should be around 110. So at 3 am there were about 5 nurses, the house doctor and the EKG tech were here testing him. Came down to 138. He is on a portable heart monitor right now and is fine.

So needless to say he didnt rest again. He is out right now. Still talking in his sleep but at least he is doing better.

His dad will be here tomorrow. I could really use the break. I am beat

Thursday, October 9, 2008

BAD DAYS

Jason is doing horrible He has had high fevers since Tuesday at 8am. Anywhere from 103-105 He has a bacterial infection in his blood Throwing up and pooping everywhere
We went for a CT scan and they saw spotting on the brain so now we have to do an MRI
We are also going to do more CT scans of his stomach and chest to make sure all is well there
He is miserable. And we haven't slept. We rest for an hour then he gets sick again.
Doctor said this is all par for the course but it is really wearing on both of us
He is hallucinating and taking about nothing relevant at all. I feel so bad for him

He is a trooper though
We will get through this

Monday, October 6, 2008

Sitting waiting

Jasons counts are at zero and we are just waiting patiently for them to go up. Maybe we can break the norm and get out of here early with no issues.
He got platelets last night and started to have the same reaction as last time. He started to get chills and a fever. They slowed them down and then he was fine. He cant get them transfused to fast or he gets sick.
He is getting blood today so i asked they do that slow as well to make sure things go good. My mom is staying tonight and i dont want her to have to deal with anything in case he got sick.

It is fall break so Austin is going to hang out with us during the day. That will be good for them both. We took Austin to the Cardinals game yesterday thanks to our friend Art and had a blast. We all work our own different team jerseys.

Jason is doing really well in school. He tested at the top of his class and what they tested on was stuff he learned last qtr of last year when he was sick. He is a smart kid.

Austin is keeping his grades up too. Shawn has really been great picking up where i have left off since i am not there. I couldnt do all of this with out him.

I want to say thanks to everyone for all that you do. I may not say it enough but we are blessed to have everyones love and support.

Thursday, October 2, 2008

All is well

Nothing new to report
We are done with the chemo for round 4. It is just the waiting game now
We just got a new roommate. A 4 mth old boy named Brady who was diagnosed with AML. I hope we can be of some support