Thursday, January 28, 2010

Done!!!

Yesterday was the last day of chemo for this round. So now all he has left is to just sit and wait for counts to drop then rise again.
Then we get to go home for about a week before transplant.

Still no word on transplant donor yet but will let everyone know when we here!!!

Wednesday, January 27, 2010

I should stop being so nice. Because i am we keep getting baby roommates and we arent sleeping at all. Jason was feeling better yesterday and then he got sick around 10 then leg cramps. He wanted to sleep but our new roommate is a little boy who just got here yesterday so he and his parents are freaking out and the little guy was crying all night. I had the nurse give Jason Morphine so he could sleep. They said they would add Ambien to his list of meds so he can have that if need be.

Shawn has some for me but how bad would i feel if i was knocked out and something happened.

The hospital is doing a fashion show today with the Cancer network and they had the inpatient kids decorate the yellow isolation gowns. Jason put a king crown on the back and said "2nd floor king" then on the front we did $ signs and glued fake money and coins.

Oh the stupid things we do to entertain ourselves

Monday, January 25, 2010

Jason is doing good. His marrow is at zero so he is set and ready for transplant. But since we dont have a donor yet and the search is still on we are doing another round of chemo. We got here Friday and it already seems like forever. Last night was the first fever so i am super tired since we didnt sleep at all. But he looks better today little by little. His body has a red rash all over it from the chemo and he has a headache whenever he moves but at least he is up watching TV. I got alot of his photo albums caught up yesterday while he was napping so that was nice too. And every Tuesday in the cafeteria they have scrap booking for parents so that will be an easy way to get them all done.
Will be in touch!

Wednesday, January 20, 2010

Good morning everyone. Thanks to all that showed up this weekend for Jasons bone marrow drive. We had about 200 people show up and get tested. That is great. All it takes is one person to save someones life.

He is doing great right now. Last appt showed all good and bone marrow was down to 2%. So we are proceeding on with another round of chemo starting this weekend and then i am thinking sometime in March will transplant.
His enzyme levels were high in his liver so taking him off some meds to see if that can be corrected.

Other than that nothing much going on. Happy 75 bday to my father in law Jimmy this weekend. Hopefully i can sneak away to see him!

Tuesday, January 12, 2010

Jason is doing great. Nothing new to report. We are just hanging out at home waiting til our next dr appt on Friday. At that time he will get a bone marrow test and routine clinic visit to make sure all counts are good and no need for transfusions. This weekend we are having a bone marrow drive. Everyone please make all efforts to attend if possible

Location: Glendale Fire Staion # 151 Date: Jan 16 Time: 7am -11am
6851 N. 52nd Ave., Glendale, AZ

Location: Cheatham Primary School Date: Jan 16 Time: 7am -11am
4725 W. South MTN Rd., Laveen, AZ

Location: Gilbert Fire Station # 1 Date: Jan 16 Time: 7am -11am
2730 E. Williams Field Rd., Gilbert, AZ

Location: Hall of Flame Date: Jan 23 Time: 10am- 3pm
2730 E. Williams Field Rd., Gilbert, AZ *Lunch event- Hot Dogs will be served
Contact: Aubrie 602-277-1390 or Oscar 602-277-1002

Tuesday, January 5, 2010

Jasons ANC is 323...that means he might get to come home today. It has to be at 250 so we are checking with the doctors. We still need to get all his prescriptions filled , i have to go to the hospital and change his dressing , get signed off that i remember how to do that..i sure didnt miss giving that up. Then i want Jason to shave his head before he comes home so he isnt leaving a trail of hair everywhere. Just had the cleaning lady come over yesterday to get the house all clean and ready for Jason..all laundry done and room ready. So a busy day ahead along with trying to get all my work done with my job.

Boy i sure have missed having a house full. He left on Dec 8th..it goes fast but drags at the same time.

For several weeks he hasnt shown any blasts so that is a good sign. But i am sure in the next week or so another bone marrow test will need to be done to make sure.
I will keep everyone posted. Still no news on a donor but having a big drive on Jan 23rd so details to follow

Monday, January 4, 2010

Jason is doing great. Everytime i talk to him on the phone i feel so sad i am not there then i go see him and he makes me laugh. He can certainly brighten up anyones day.

The swelling has gone down in his mouth and nothing ever showed from the scan so must have been some kind of infection.

His hair is falling out like crazy. I told him we need to shave it off at the hospital because i dont want to follow him around with the a dog brush!