These last few weeks have been crazy. We were supposed to go to the hospital March 8th to start chemo then transplant. That has gotten postponed several time because Jasons liver enzymes have been elevated to a point where the doctors didnt think his liver was ready.We were admitted last Wed and we were supposed to start chemo Thursday but his liver was still too high and it also felt larger to the touch. They decided to do a liver biospy Thursday and we found out why he has been having these issues. We thought origionally it was due to the chemo or to all the meds he was one and that they would go down on their own. But the biopsy showed that it was actually high doses if IRON in his liver. You get that build up over time due to the number of blood tranfusions he has had over the last couple of years.So there are 2 ways to fix this. Bleed him out( take a bag out every month for 6 mths) Not an option we dont have that kind of time OR with meds. But those again take 3 months to get back to normal levels. So we are going back Wed and starting chemo with transplant next week and will have to keep a close eye on his liver and hope that it can take it.We have also changed to a stem cell transplant with low intesity chemo instead of bone marrow and high dose chemo.We have to watch the liver and once the new cells graft then we can start the meds. So long story short i have been stressed and we all just want this to start so it can end. thanks for keeping in touch with me and please feel free to pass this on.

Latest UPDATE

We arent going in now until 4/13 because the donor center wasnt open in observance of the Easter holiday. So now the transplant is rescheduled until 4/21.
We go in tomorrow to clinic for an appt and again on Friday..
so you never know things could change even tomorrow..