His counts are at 5 today
So of course not leaving soon, but i did talk to the doctor and he will be able to go home at least for a couple of days before we start round 2.
He is not hooked up right now and only needs to be a few hours a day for antibiotics. AND GUESS WHAT!!!!! Tonight at 8pm after visiting hours he can out on a mask and leave the room and walk around the floor. He hasnt left the room for almost a month. So i am excited. I told him we need to find a ball and go bowling
Thursday, June 26, 2008
Tuesday, June 24, 2008
Cancel the party
Well Jasons counts keep going down and he is at zero today. So not coming home anytime soon. He is sleeping right now because they are gaving him Platlets.
We are moving back downstairs to the second floor in his old room today with his old roommate so that is a plus at least. But his roommate is sick so we cant even open the curtain and talk to him.
One nurse said today that if Jasons counts dont come up fast enough he might not even go home and would start his second round of chemo next week. I pray that doesnt happen. That would make for 2 months here with no break. His heart was broken. He looked so sad when she said that. So we will be clarifing that with the doctor.
Will keep everyone posted.
We are moving back downstairs to the second floor in his old room today with his old roommate so that is a plus at least. But his roommate is sick so we cant even open the curtain and talk to him.
One nurse said today that if Jasons counts dont come up fast enough he might not even go home and would start his second round of chemo next week. I pray that doesnt happen. That would make for 2 months here with no break. His heart was broken. He looked so sad when she said that. So we will be clarifing that with the doctor.
Will keep everyone posted.
Saturday, June 21, 2008
Homeward Bound
Jason is coming home Monday pending no fevers or infections. They unhooked him from BOB today. He only needs hooked up when he gets antibiotics. Which is only twice a day for a couple hours
He is so happy!!!
He wants fast food so bad but we have to pass on that. Daddy Shawn will have to make a burger taste like McDonalds
We might even be able to take him to the circius on Wed
He will be home Monday until Monday June 30th
Then they will do another bone marrow and see how much we got
Everyone pray your hearts out this week they come back good
Austin and his dad are leaving for Iowa on Tuesday for two weeks
So that will be a nice well deserved break for both of them
Keep everyone posted
He is so happy!!!
He wants fast food so bad but we have to pass on that. Daddy Shawn will have to make a burger taste like McDonalds
We might even be able to take him to the circius on Wed
He will be home Monday until Monday June 30th
Then they will do another bone marrow and see how much we got
Everyone pray your hearts out this week they come back good
Austin and his dad are leaving for Iowa on Tuesday for two weeks
So that will be a nice well deserved break for both of them
Keep everyone posted
Friday, June 20, 2008
Coming home
Well Jason is doing good says the big doc so hopefully he will be home by next weekend. I am sure he cant wait to sleep in his own bed and not have the cords attached to him. He named his machine "Bob" and that will be nice to be free of him as well.
Jason is getting sick of being in the hospital as he was asking his dad all sorts of questions last night. Like why is he there so long, why does he have to take so much medicine, what can happen to him. He is a smart kid and you have to be straight but it is hard having to worry about your child going through this and what can happen. He should be swimming in the backyard with his friends and running around playing football. But he is strong and will battle through this. We are all learning patience.
But it is hard looking at his room empty and not seeing him around the house
So i hope the count down is on for him to get home
Jason is getting sick of being in the hospital as he was asking his dad all sorts of questions last night. Like why is he there so long, why does he have to take so much medicine, what can happen to him. He is a smart kid and you have to be straight but it is hard having to worry about your child going through this and what can happen. He should be swimming in the backyard with his friends and running around playing football. But he is strong and will battle through this. We are all learning patience.
But it is hard looking at his room empty and not seeing him around the house
So i hope the count down is on for him to get home
Tuesday, June 17, 2008
Good moods
Nothing really to update except Jason is still happy as ever. He loves his soft new head. We shaved him on Sunday. And through out all the time he has been there he has gotten so much stuff i had to take 2 trips to the car to bring stuff home and he still has alot there.
Thanks everyone for everything
Thanks everyone for everything
Monday, June 16, 2008
Happy 9th Birthday!!
Happy 9th Birthday Jason!
Jason had a great turnout for his 9th birthday on Saturday. That tiny little room was crammed with friends and family. Jason made out on gifts and has plenty to keep him occupied. Now we just need a big suitcase to haul it all in from room to room as they continue to transfer him around the hospital. We love you Jason and hope you got everything you wanted! :)
Jason had a great turnout for his 9th birthday on Saturday. That tiny little room was crammed with friends and family. Jason made out on gifts and has plenty to keep him occupied. Now we just need a big suitcase to haul it all in from room to room as they continue to transfer him around the hospital. We love you Jason and hope you got everything you wanted! :)
Friday, June 13, 2008
Moved again
Well Jason has a cough now so he got moved to a private room just in case he is coming down with something. Cant have him getting his roommate sick. Tomorrow is his birthday so i hope he isnt ill. He still looks good though.
He has moved about 5 times so far. So i need to start taking some stuff home so there isnt so much to move each time.
I joined a group called Hope Kids that offers alot of things for familys like ours. We are going to take Austin to the circus in the next couple of weeks. And they have tickets to Firebird for some drag races along with pit passes. Jason wont be well enough to attend but it will keep Austin happy.
He has moved about 5 times so far. So i need to start taking some stuff home so there isnt so much to move each time.
I joined a group called Hope Kids that offers alot of things for familys like ours. We are going to take Austin to the circus in the next couple of weeks. And they have tickets to Firebird for some drag races along with pit passes. Jason wont be well enough to attend but it will keep Austin happy.
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