Sorry i havent updated in a while. Jason is doing great. On Jan 19th he got his broviac out. He is feeling great and looking good.
Nothing really new to report here these days. I think he is getting bored being at home. We are both getting antsy. But he keeps doing his homework and i keep working.
He is glad to be able to eat out more often and get a change in his diet. We go back Feb 11 for a checkup. Will let everyone know how that goes.
Thursday, January 29, 2009
Wednesday, January 14, 2009
Almost done
I just wanted to let all of you know that Jason's final tests have come back clean. His bone marrow is healthy and he is in remission. On Monday he has surgery to take out his broviac (central line) . Then he just has to take oral medication for 6 months. He still cant attend school because it is flu season and his immune system is still not up to par. His immune system today came in at 1144 compared to what ours would be at 20,000. But it is slowing rising. In about 6 months he will be where he should be.
This has been very challenging and a learning experience for all of us. I want to thank all of you for all your support and prayers. We couldn’t have done this without all of it.
This has been very challenging and a learning experience for all of us. I want to thank all of you for all your support and prayers. We couldn’t have done this without all of it.
Wednesday, January 7, 2009
Just a few more days
Yesterday was Jason's last bone marrow test. We are still pending the results from the dr but if still clean he can get his broviac out on Jan 19th. They also let him eat McDonalds yesterday. Of course we had them make it all fresh. He ordered a cheeseburger, fries, and chicken nuggets. And as we all know the grease didnt settle. I had to feed him some nausea medicine afterwards but he was all smiles. I took some pictures and will have them posted.
His hair is growing so much i need to buy some clippers to trim it up. But he doesnt want me touching it.
Will update everyone as soon as i hear the results.
His hair is growing so much i need to buy some clippers to trim it up. But he doesnt want me touching it.
Will update everyone as soon as i hear the results.
Wednesday, December 31, 2008
I know it has been a long time since i updated this. All is well. We have been home for a week and loving it. I still feel like i have to rush and get back to the hospital. But sooo sooo happy we dont. Jason's hair is growing back so good. I keep trying to buy him pants but he has grown so much i have had to take the clothes back twice since he cant go with me to try them on.
Tonight the adults are going out and the kids are staying at grandma's house. I am kinda nervous but 2008 has been a long year and i am ending this right!
The new dog is fitting in well. He likes to jump on you and chew on everything but he is still a puppy.
We have had a nice week being here. My sister and brother have both made it in from out of town. So all the Twilley's have been enjoying each other.
We went to the doctor yesterday and Jasons counts were 609. Slow to rise but will get there. Jan 6th at 9:30 is his last bone marrow test. If it comes back clean then we go Jan 19th to take out the boviac. Oh and then life slowly resumes. He still cant go to school this year cause it is now flu season so i will be working from home to be with him.
This year has been hard but we made it. HE MADE IT!
Tonight the adults are going out and the kids are staying at grandma's house. I am kinda nervous but 2008 has been a long year and i am ending this right!
The new dog is fitting in well. He likes to jump on you and chew on everything but he is still a puppy.
We have had a nice week being here. My sister and brother have both made it in from out of town. So all the Twilley's have been enjoying each other.
We went to the doctor yesterday and Jasons counts were 609. Slow to rise but will get there. Jan 6th at 9:30 is his last bone marrow test. If it comes back clean then we go Jan 19th to take out the boviac. Oh and then life slowly resumes. He still cant go to school this year cause it is now flu season so i will be working from home to be with him.
This year has been hard but we made it. HE MADE IT!
Tuesday, December 16, 2008
41 days later
And still here.
All is well and Jason looks great. He got blood today. But we still have no counts.
I hope we are home by Christmas.
Jason was able to brush his hair yesterday for the first time in months. He was excited. He looks so cute.
Austin bailed on the dance last week and came and hung out with Jason at the hospital. Guess he isnt quite ready for that scene. Which is fine with me.
We got a new dog. Buster. He was given to us by one of Shawn's customers. He is cute except that he likes to hop the fence and run the neighborhood. Jason said he is a cat in a dog suit.
We got some training ahead of us there.
Everyone cross your fingers we get to come home soon.....
All is well and Jason looks great. He got blood today. But we still have no counts.
I hope we are home by Christmas.
Jason was able to brush his hair yesterday for the first time in months. He was excited. He looks so cute.
Austin bailed on the dance last week and came and hung out with Jason at the hospital. Guess he isnt quite ready for that scene. Which is fine with me.
We got a new dog. Buster. He was given to us by one of Shawn's customers. He is cute except that he likes to hop the fence and run the neighborhood. Jason said he is a cat in a dog suit.
We got some training ahead of us there.
Everyone cross your fingers we get to come home soon.....
Friday, December 12, 2008
WOW. Didnt realize it had been so long since i updated the site. Jason is doing great. His dad was able to come out and visit this round. That really made him happy.
Jason is doing great in school, I only have to ask him once to do his homework and some days he asks for it before i am even ready to start. He got straight A's in school. Hard to believe a kid fighting cancer can be so great. But thats my Jason.
His counts are still at zero but we are hoping to be out of here by next weekend and be DONE~!!!
This round has gone really well. I would say once of the easiest so far. Long though. We have been here since Nov 5th. Ready to leave.
Austin is going to the 6th grade school dance tonight. My guy is growing up so fast. I feel like i have missing out on so much of his life since i am never home. But we are all going to be a family again soon.
Shawn has done a great job keeping the house running. And keeping his business going and keeping me going. I couldnt ask for a better man to be in my life.
We might get another dog today. Shadow needs a friend and Shawn did some work for a lady who found a stray. He is cute. They call him Boy so we need to come up with a name....
Jason is doing great in school, I only have to ask him once to do his homework and some days he asks for it before i am even ready to start. He got straight A's in school. Hard to believe a kid fighting cancer can be so great. But thats my Jason.
His counts are still at zero but we are hoping to be out of here by next weekend and be DONE~!!!
This round has gone really well. I would say once of the easiest so far. Long though. We have been here since Nov 5th. Ready to leave.
Austin is going to the 6th grade school dance tonight. My guy is growing up so fast. I feel like i have missing out on so much of his life since i am never home. But we are all going to be a family again soon.
Shawn has done a great job keeping the house running. And keeping his business going and keeping me going. I couldnt ask for a better man to be in my life.
We might get another dog today. Shadow needs a friend and Shawn did some work for a lady who found a stray. He is cute. They call him Boy so we need to come up with a name....
Monday, December 1, 2008
Just a quick update to let everyone know that Jason is doing great. He has been eating like crazy and keeping me laughing. He is so funny sometimes.
His dad gets here tomorrow for a week so he is excited about that. It will be a nice break for me to go to the office and get all my x-mas decorations up at home.
Hopefully jason will be home by mid Dec and we can enjoy x-mas as a family. On Thanksgiving Shawn and Austin were in Prescott and it was just me and Jason. I was laying here fighting back tears cause i missed my family. But it will be all worth it in the end!
His dad gets here tomorrow for a week so he is excited about that. It will be a nice break for me to go to the office and get all my x-mas decorations up at home.
Hopefully jason will be home by mid Dec and we can enjoy x-mas as a family. On Thanksgiving Shawn and Austin were in Prescott and it was just me and Jason. I was laying here fighting back tears cause i missed my family. But it will be all worth it in the end!
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