Many updates

I didnt get a chance to update anyone about what happened last week when he had the storms.
There was a really bad storm here in Phx Thursday night and our room started leaking again. Our roommate had to move out cause water was dripping on their bed.
The PICU flooded and their were frogs hopping around. We lost power about 5 times. Quite the night.

So updates since the nose bleed.
Jason had to have a blood transfusion, and platelets.
They had to pack his nose and the stuff slowing dissolves. Maybe he will learn to keep his fingers away from his nose. Now he snores while sleeping.....

Today he is not feeling good and they have antibiotics ready incase he spikes a fever. His body aches and his butt hurts. Dont know why but he is getting morphine and another platelet transfusion to stay on top of things.

Austin has his first football game Saturday. I cant wait to see him. Shawn and Erin are going to California so he wont be able to make it. But we will all be rooting for him.

Thanks to my family for stepping up and giving me a break a few nights a week. It is nice to see Austin and Shawn. Although the house is a mess cause we are remodeling since the breakin.

Bloody nose

I am spending the night with Jason tonight. We've had a two hour long battle with a bloody nose. It kept dripping and dripping with no avail. We tried toilet paper, a nose pincher, ice bags, rags and even went the holistic route with some tea bags to constrict the blood vessels. The nurses evern stood there for a good 20 minutes or so pinching his nose. They have it packed with some powdery stuff to soak it up and help form a clot. He is very uncomfortable but he's a real trooper. He's going to have to sleep with it over night and give it a chance to clot. He will probably have to have some platelets tomorrow.

Night all!

Laura

Good days

He has handled chemo really well this round. He got sick once and that is it. But now is when his counts start dropping and we need to watch for fevers and infections again. When we checked in last week his counts were over 6000 and we are around 1700 now. So on the roll down hill....
He is getting a blood transfusion right now so he is sleeping. We havent been getting good sleep cause our roommate is a sick little baby boy who is having a hard time and cries alot. I feel so bad for them. They are the nicest family.


We also started last weekand his teacher comes on Thursdays but i have to help during the week. Man i am not a teacher. But we will make this year a good one.

Good days

He has handled chemo really well this round. He got sick once and that is it. But now is when his counts start dropping

Lunch Break

I am so glad I got to see Jason on my lunch break today. It was a much needed break from my rough day at work. Jason is putting on a lot more weight which made me very happy to see. Please try and visit him as much as you can. I wish I could more...

Jason not only has to deal with his own pain, but he also has to deal with the pain of the other children he shares the room with. This poor little baby boy who is only 22 months old had a brain tumor and now they found three more. He was throwing up blood all day and had black diarrhea in his diaper. His breathing was so loud and his lungs were so full of fluid. It was so hard to be in there listening to him. Poor Kim and Jason have to see it on a daily basis.

Please pray for Jason and that little boy. Pray for all of those poor little kids who have to suffer. They are all angels.

If you have a few extra dollars, please send a donation to the Phoenix Children's Hospital. Those children really need it.

http://www.phoenixchildrens.com/ways-of-giving/

Laura

hi people
bye
jason

Back for round 3

Yesterday Aug 20th we checked in for round 3 of chemo. Had another spinal tap and started with treatment at 11am. He is so strong he isnt even feeling the morphine for numbing the pain. So he was crying of couse, then forgot about the pain latter. Decided he was hungry and ate a cheeseburger, fries, and 5 rice krispies treats. Then it all came back up.

Then the hospital had no rooms available and we sat in the clinic until 4pm. They kicked us out and we had to come over and sit in a treatment room until 7pm. Finally we got our room, and it is the big one with the stationary bike. So i am happy cause now i can work out again while sitting in here.

And the best news of all is Jason is down to .04% leukemia cells in his body. That is amazing considering we started at 95%.
I couldnt be happier and have nothing but great things to say about his doctors.

Austin is doing good in school this year and has started football. Shawn is coaching again they are having good bonding time together since i will be here with Jason. I cant believe how big Austin is getting. WOW! It is weird to watch him turn into a man.

Well bye for now. And feel free to come and visit or call us anytime.