Shawn, Austin, and I went and saw Jason today. I havent been up in two days and it seems like forever. I dont know how parents can stay away from their babies. I have a hard time telling myself its ok to let him spend time with his dad and for me to get things done around the house. Guess all moms are like that though.

Well a couple of things have changed with Jason just in the last two days. His jaw is really swollen and he is talking funny. They did a CT Scan but all came back ok. He is on antibiotics just in case but they didnt see anything. His front bottom tooth is exposed all the way to the root. His gums have disappeared and his gums are all red. Again he is doing the meds that are needed so we are checking to see if maybe different toothpaste will help with the sensitivity and also checking to see if the gums will grow back. I hope so...

And last but not least, chuncks of hair are coming out. It really seemed to take a while this time but he doesnt seem to mind. He has bald spots on the sides and he looks so cute.

Will keep everyone updated on any new changes that happen.

Have a safe New Year everyone!

Jason is doing great. We had a wonderful Christmas thanks to PCH and Tod and my family all helping to get us gifts for the kids. My sister Shannon surprised everyone by coming to town so that was just the icing in the cookies. Brian is also in town with Jason i am home getting much needed rest and time with Shawn and Austin. I am so tired though i am sleeping 12 hours at a time. I think my body is making up for lost sleep and preparing for more lost sleep in the months ahead.

Jason is getting platelets today again, he seems to be getting more transfusions this time around with platelets and blood but maybe that is expected due to the type of chemo.

His hair is still holding strong so no updates there.

I will let everyone know when i have more details on the bone marrow drive a well!!!

All is good here, Jason is doing great. We are just waiting for his counts to go down and then come back up again..so it is boring as you very well know. We are making the best of it though.
With the storms today the power went out in the hospital for a while. Everyone was running around with flash lights...but we are back in business

Today is a good day. All is going well. We had a great time last night with alot of friends and family coming up. It was just like at home, laughing and joking and playing games. The kids always play board games with our friends so thanks Lynds for the idea of MAD GAB.

Jason is getting Plateles right now and is really tired. Might even be having an allergic reaction to this batch. He is coughing and has cramps in his legs. He did get Benadryl so that seems to help some but we are still monitoring him just in case.

Austin might go the school dance tonight with his friends. I really hope he does. He would have fun and it would get his mind off of things. I was able to spend time with him yesterday and man, once you get him talking his keeps going and going. It is so nice to see how your kids grow up and turn into young men.

Will keep everyone posted on any other updates....

Jason is doing good as always. Last night was his last night of chemo and he has handled it all very well. He only had a fever one night and has only vomitted a few times.
Still his spirits are good and we are loving our time together. We have been lucky enough to have our own room this entire stay. Knock on wood. It has been slow so we havent had to share. That has made this stay not so bad. Shawn and Austin have come up to vist and we can be ourselves and watch football, play games and be loud and not worry about who is on the other side of the curtain.

Austin surprised Jason yesterday with the new Grand Theft Auto game for his XBOX. And all who know Austin, he doesnt share his $$ and he went and bought the game for his brother because he felt so bad he has to deal with all of this again. Both of my sons have such a great heart. I am blessed.

Our meeting with the BMT team has changed to Friday am at 10. So Uncle Robert will be taking Austin to the airport so that Shawn and I can attend the meeting. Everyone pray for us to have an open mind and ask all the right questions of the doctors and have an understanding of what will be happening

Jason is still doing great. Today is his last batch of chemo for this round. His spirits are high and he is keeping up with homework and as always making me laugh.

We meet on Thursday with the BMT team so we will have more of an idea of what the plan is. I will keep everyone posted

Well the tests came back from Jasons bone marrow aspiration and he has 33% leukemia cells. They started chemo yesterday and he tolerated the first batch well. Then last night he started throwing up and had a fever. Then to top it off our bathroom sink over flowed and the room flooded. So we have since moved to another room. His fever is gone and he ate breakfast fine. Back to homework and Monopoly. :)

OK well alot has changed since last time. Jason had a doctor appt on Dec 2 and there were 4% blasts in his blood. That means the Leukemia is back. So over the weekend we jammed in an early X-mas with family, we hung out for Austins 14th bday by taking the kids to the Cardinals vs Vikings game, and relaxed at home.
We got admitted Dec 8th and even since his last appt his ANC has dropped over 400 points down to 442. But what is odd is they havent seen any more blasts in his blood since. I have to talk to the doctor about that....i dont quite understand. But a miracle would be nice and they can say it was a mistake
So yesterday we came in about noon. Did echo, ekg, x-rays, ton of blood work, swabbed his nose to make sure not sick and just getting moved around and settled. We didnt sit down until 7:30. His school teacher came and dropped off homework... man then on top of all that i forgot how much sleep you DONT get up here. But we will be fine. Jason has high spirits.
We are working on a bone marrow drive for him, i will keep everyone posted

Nothing new to report here just wanted to let everyone know that Jason is doing great! This weekend he gets to go on a ride down Scottsdale Rd in a classic car show as part of a Hope Kids event. He is super excited

Everything still going great with the boys
Austin said he might try out for baseketball today, that would be fun since we took the year off of sports. They are getting bored so hopefully he makes it

Jason has a dr appt today but expect all to be good. He looks amazing!

Everything still going great with the boys

Austin said he might try out for baseketball today, that would be fun since we took the year off of sports. They are getting bored so hopefully he makes it

Jason has a dr appt today but expect all to be good. He looks amazing!

THANKS HOPE KIDS

We were able to take the kids to see Black Eyed Peas and U2 last night. It was their first concert. The concert was at the Cardinals football stadium and there 90,000 people there. WOW it was loud but fun..

Jason is still doing great. We go again for another check up on 10/28. Dont forsee any issues since he looks great!!!

Nothing new to report. Jason is doing great and him and his brother are visiting their dad in Iowa for all break. A much needed break for everyone. He got his report card back on Friday and he got all A's and 1 B. He didnt miss a beat!

Sorry it has been so long since i have updated this. We are all doing great. Jason is back at school like nothing happened. Last week he wrecked his bike on the way home and had to get stitches. I swear he likes the doctors or something.

He is given the opportunity to preform on stage next week at the opening of David Cross comedy show here in Phx, that will be so much fun. Just a few minute skit but he wants to be an actor so lets see how he does

Will keep in touch

Sorry it has been so long since i have updated this. We are all doing great. Jason is back at school like nothing happened. Last week he wrecked his bike on the way home and had to get stitches. I swear he likes the doctors or something.

He is given the opportunity to preform on stage next week at the opening of David Cross comedy show here in Phx, that will be so much fun. Just a few minute skit but he wants to be an actor so lets see how he does

Will keep in touch

Jason had a blast at camp. It seems like he grew 3 inches in one week. I cant believe how big they both are. He also went back to school today. I am so happy he was able to get up and go to school this year. Home schooling was fun for him but not for me.

It was just so nice to see him in his uniform riding off to school. I am so blessed

We should change his heading from Battle with Leukemia since he won!

Jason left yesterday for camp. All the kids from the hospital go every year. They head up to Prescott for the week. I am missing him since he just came home last week. He was excited and looked so happy. We saw some kids we knew so at least he wont feel alone.

Sounds like they have a full week scheduled. I cant wait to hear the details.

Austin started Jr High today. Man I remember him in diapers!

I love my boys and am so happy!

Wanted to just say a quick hello. The kids are doing great and still out in Iowa. They should be there for another or so. They have been gone for so long but they are having fun.

Brian is fine. His heart attack was mild and he can take medicine and be as good as new. He was back to work in a few days.

Jason leaves on 8/2 for camp for a week in Prescott with all the kids from the hospital. Then when he gets back he will be at school. So his life is back on track!!!!

The kids are still in Iowa and having a good time. Riding bikes and visiting family.

Brian (their dad) had a heart attack yesterday. Dont know how severe yet but will keep everyone posted. The kids are doing good and i am sure they are being supportive. Keep him in your thoughts

Jason is doing great!!! His last doctors appt in Iowa, his counts were at 3300. Better than ever.

We just got back from California from his Make A Wish and had so much fun. He was able to be picked up from the hotel in a limo, meet Zack and Cody and the rest of the crew. Get lots of autographs, free stuff, and the best part was we were able to sit in the audience and watch them film an episode. We were also able to go on set and see all the different stages, their dressing rooms and so on. The crew was really nice.

Then Sunday they went to Universal Studios with their dad. Shawn and I went on Sunday after the boys left so that they could spend time with their dad.

All is going good and they should be back in a couple of weeks. I missed them so it was nice to see them half way through.

Jason and Austin are having a great time in Iowa. I havent talked to them to much so they can do their own thing but they are keeping busy. I will see if i can get some pictures posted.

We are still waiting on the details of his Make A Wish, a vacation will be nice

Bye Bye boys

They have left for the summer to go see their dad and his family. They were so excited. Austin even had a smile on this face. Which is alot coming from a 13 year old.
They have been hanging out and riding their dirt bikes. Although they did say it was raining alot.

They both ended the school year with all A's and B's. I am so proud of them. Austin also tied for 3rd place on his Science project.
I cant believe how fast time flies

Tomorrow will be 1 year since Jason was diagnosed. It is amazing to see how well he is doing. I pray every night that my family will stay strong and he stays healthy. Again thanks for everything!

IOWA here they come

Jasons tests came back clean so they are off to Iowa. They are super excited. We are all ready for a break from each other. We are getting on each others nerves.
Today is the last day of school for Austin, i know he is excited. Yesterday he asked me what High School he was going to cause there is "someone" he likes, and wants to make sure they are going to the same place. Man he is growing up

Jasons bone marrow test went well last week. His counts dropped a little but nothing to be concerned about. The initial smear from what we saw showed 2% blasts. Down from 8%. Still waiting on the fishe to come back clean and then they are off to their dads this weekend for the summer. I am sooo gonna miss them.

we went to the lake this weekend and they were tubing, riding jet skis and fishing. It was so nice to be able to do those things without worrying.

His Make A Wish is scheduled for the end of June so he is super excited about that.

Once we get the final results i will update everyone

Make a Wish

We got a call about Jason's Make A Wish. We will be going the end of June. He wants to meet Zach and Cody from the Disney show Suite Life of Zach and Cody.
The boys will be heading to Iowa for the summer to visit their dad pending his bone marrow comes back clean next week. Then they will fly to Cali with their dad. Shawn and I will meet them there. He is super excited.

He looks so good and is doing amazing. He is still finishing up school work and hating it all but he did pass to 5th grade. Some kids dont even do school work while sick. I am so proud of his dedication.

All is well

I am so bad at updating this. Jason is doing great. He and all his cousins and uncle and grandpa went and saw the monster trucks this past weekend. He has been swimming like a fish in the cold pool and running around like a boy on a sugar high. I am so happy he is doing good.

Will keep everyone updated on his tests in a few weeks

I have been trying to update this thing for a week and it was acting up.
Jason is doing great, no replase.

The flu bug just got him down. His counts and blood levels all bounced up higher than ever. He is out playing tackle football at the park and riding his new bike that Shawn got him. He looks amazing.

He got his report card and got 5 A's and 1 B.
This week is AIMS testing so he goes in at 3 and takes the test in the office after the kids left.

I love that kid and couldnt have asked for a better family!!!!

Jason is still doing great. He looks great and we are having a great time together

I went for a run yesterday and he rode his scooter with me, i pushed him part of the way, man that adds to the workout.

Just wanted to let everyone know that on Friday i will have a better update for you...

Jason is still doing great. He looks great and we are having a great time together
I went for a run yesterday and he rode his scooter with me, i pushed him part of the way, man that adds to the workout.

Just wanted to let everyone know that on Friday i will have a better update for you...

Today is the day

We had a blast in Cali
Went to Sea World, Lego Land, Mission Beach, rode the trolly in San Diego
The kids were able to stay with their Aunt Anni for 2 nights
It was so nice

Now today Jason gets his labs drawn to see if his counts are still falling
If so, then another bone marrow tomorrow so see if relapse
Everyone think of us.....

I sure hope i am wrong

Jasons doctors appt didnt go like i had hoped. His platelets have been dropping since he was discharged I think they are down over 100,000 His ANC even down from last month around 20 points. His blood cells look steady. So we have to go back in 2 weeks and do another set of labs, if they dont improve or worsen then the next day we have a bone marrow test to see whats going on. The Dr said something that something could be in his bone barrow keeping it from growing. Or his could have an infection or something. He looks great and is doing really well.
But just in case things dont go as we all hope.....we are taking the kids to California next week during spring break. Going to Sea World and see their Aunt Anni. Just have a great family vacation and make the most out of each other.

Everyone pray i am being over paranoid and Jason is fine.....,

WOW it has been forever since i updated this. Jason is doing great. We go in tomorrow for a checkup. He feels good, eating good, playing with his friends and doing great in school. Nothing really new to report. We have gotten back into our normal routine so i dont even look back at the last year we had. He just looks so good you dont even remember.
Tonight we are going to a hockey game so that will be nice.
Then next weekend i have Jason signed up for the Cardinals football camp.
Last weekend we hiked up South Mtn. 5.5 miles for the American Cancer Society.

Keeping busy for sure. Thanks again for everything. I will get njew pictures added soon i promise

All is well

Jason is doing great. We go to clinic for an appt tomorrow. He looks good and we are having fun spending time together.
I need to get some new pics up here. I will work on that.

Sorry i havent updated in a while. Jason is doing great. On Jan 19th he got his broviac out. He is feeling great and looking good.
Nothing really new to report here these days. I think he is getting bored being at home. We are both getting antsy. But he keeps doing his homework and i keep working.
He is glad to be able to eat out more often and get a change in his diet. We go back Feb 11 for a checkup. Will let everyone know how that goes.

Almost done

I just wanted to let all of you know that Jason's final tests have come back clean. His bone marrow is healthy and he is in remission. On Monday he has surgery to take out his broviac (central line) . Then he just has to take oral medication for 6 months. He still cant attend school because it is flu season and his immune system is still not up to par. His immune system today came in at 1144 compared to what ours would be at 20,000. But it is slowing rising. In about 6 months he will be where he should be.
This has been very challenging and a learning experience for all of us. I want to thank all of you for all your support and prayers. We couldn’t have done this without all of it.

Just a few more days

Yesterday was Jason's last bone marrow test. We are still pending the results from the dr but if still clean he can get his broviac out on Jan 19th. They also let him eat McDonalds yesterday. Of course we had them make it all fresh. He ordered a cheeseburger, fries, and chicken nuggets. And as we all know the grease didnt settle. I had to feed him some nausea medicine afterwards but he was all smiles. I took some pictures and will have them posted.
His hair is growing so much i need to buy some clippers to trim it up. But he doesnt want me touching it.


Will update everyone as soon as i hear the results.